Further Information
Further information about the way in which the NHS uses personal information and your rights in that respect can be found in:
The Information Commissioner’s Office is the Regulator for the Data Protection Act 1998 and offer independent advice and guidance on the law and personal data, including your rights and how to access your personal information. For further information please visit the Information Commissioner’s Office website at http://www.ico.gov.uk.
The NHS Care Record Guarantee: http://www.nigb.nhs.uk/pubs/nhscrg.pdf
The NHS Constitution: https://www.gov.uk/government/publications/the-nhs-constitution-for-england
Care.data programme: http://www.england.nhs.uk/ourwork/tsd/care-data/gp-guidance/
The HSCIC Guide to Confidentiality gives more information on the rules around information sharing : http://www.hscic.gov.uk/confguideorg
An independent review of how information about patients is shared across the health and care system led by Dame Fiona Caldicott was conducted in 2012. The report, Information: To share or not to share? The Information Governance Review, be found at:https://www.gov.uk/government/publications/the-information-governance-review
The NHS Commissioning Board – NHS England – Better Data, Informed Commissioning, Driving Improved Outcomes: Clinical Data Sets provides further information about the data flowing within the NHS to support commissioning.http://www.england.nhs.uk/wp-content/uploads/2012/12/clinical-datasets.pdf
Please visit the Health and Social Care Information Centre’s website for further information about their work. Information about their responsibility for collecting data from across the health and social care system can be found at: http://www.hscic.gov.uk/collectingdata